The below registry includes details on the research projects hosted on and using the Wessex Secure Data Environment.
DAA: Data Access Approval
DSA: Data Sharing agreement
| Data field | Definition |
| Project name | Describing Overall Survival and First-Line Treatment Patterns in High-Risk Invasive Urothelial Bladder Carcinoma Post-Resection Patients |
| Lay summary | Details from 78 patients are being used in this study, using routinely collected historic data that has been de-identified before it is entered into the SDE.
By bringing together different types of data, from multiple departments, in a single consistent dataset using the SDE, we will be able to analyse the ‘real world’ approaches to patient care taken by our clinical teams. In doing so, we will be able to benchmark our compliance with national gold standard treatment options to ensure that patients are receiving the best care possible. In addition to highlighting options for immediate changes in patient care pathways, we anticipate that this will allow for new research hypotheses to be generated for future prospective research studies. |
| Unique identifier | SDE_WXS_PROJ_52 |
| Contracting organisation name Trading name * | UNIVERSITY HOSPITAL SOUTHAMPTON NHS FOUNDATION TRUST |
| Legal name of contracting organisation | As above |
| Website links to find more information | Bladder Cancer – HRA approval |
| Date of counter-signed DAA/DSA | 17 January 2025 |
| Period of DAA | End date 31 July 2026 |