Describing Overall Survival and First-Line Treatment Patterns in High-Risk Invasive Urothelial Bladder Carcinoma Post-Resection Patients

Lay Description

Details from 78 patients are being used in this study, using routinely collected historic data that has been de-identified before it is entered into the SDE.

By bringing together different types of data, from multiple departments, in a single consistent dataset using the SDE, we will be able to analyse the ‘real world’ approaches to patient care taken by our clinical teams. In doing so, we will be able to benchmark our compliance with national gold standard treatment options to ensure that patients are receiving the best care possible.

In addition to highlighting options for immediate changes in patient care pathways, we anticipate that this will allow for new research hypotheses to be generated for future prospective research studies.

Public Benefit Statement

Bladder cancer affects approximately 10,000 patients every year in the UK. Clinical outcomes remain challenging, and improvements have been slow.

“By bringing together the information held at UHS, across complex data systems, we will be able to consider improvements to patient diagnostic and care pathways that we hope will improve on patient outcomes and patient experience. It is really exciting to see the SDE approach starting to unlock this potential which has previously been impossible to harness.”
Prof Simon Crabb, PI and Lead Researcher, UHS.

For patients we will:

• Benchmark our adherence to gold standard treatment options
• Make rapid changes to the patient’s diagnostic pathways and care options
• Improve outcomes and quality of life
• Enable new hypotheses and generate future research into the disease’s treatment and care.