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Governance

Strong governance makes sure the Wessex Secure Data Environment is run safely, fairly and in the public interest. This page explains who oversees the SDE, how decisions about data access are made, and the safeguards in place to ensure research is transparent, well-governed and accountable.

9 Live applications
13 Active studies
23 DAC approved studies
0 National 2 Other 11 Wessex
Study location mix

How the SDE is run

The Wessex Secure Data Environment is run through a clear and simple structure that keeps people’s data safe and ensures the service is always used for public good.

At the top is the SDE Board. This group checks that the SDE is safe, well run and meeting national NHS standards. The Board supports the Senior Responsible Officer (SRO), who has overall responsibility for how the service is delivered.

Beneath this, the Senior Leadership Team looks after the day-to-day running of the SDE. They oversee operations, data security, risk, performance, and the smooth running of the live service.

The SDE’s Digital Critical Friends are involved throughout this structure and help shape decisions that affect how the SDE operates. Their role is an important part of keeping the service transparent, trustworthy, and grounded in public expectations.

If you want to see more detail, you can explore our Terms of Reference and other documents on the Resources page.

Download high level organogram
Image showing high level organogram of the Wessex SDE governance structure

Wessex Data Access Committee

The Wessex Data Access Committee (DAC) is the main decision-making and advisory body for data access within the SDE.
It is made up of four public members, six professional members, and a non-voting Chair.

The DAC reviews all research studies requesting access to data and focuses on:

  • Public benefit
  • Ethical alignment with permissions, our [Core Values link], and public acceptability
  • Prioritisation in line with the Wessex SDE Strategic Research Priorities link
  • Oversight of the SDE operating as a Platform-as-a-Service

All approved projects are added to our Data Use Register once they begin using SDE data.

Black and white photo of Rachel Chappell

Dr Rachel Chappell

Chair of the Wessex DAC & SDE Delivery and Centre of Excellence Lead

Rachel is Chair of the Wessex Data Access Committee and Manager of the Southampton Emerging Therapies and Technologies (SETT) Centre at University Hospital Southampton.
Black and white photo of Lindsay Anderson

Lindsay Anderson

Public Member

Lindsay has experienced life-saving surgery twice after being born without an oesophagus. As a passionate participant in a wide range of health research projects, she is committed to encouraging other members of the public to get involved in research and help shape its future.
Black and white portrait of Heather Case

Heather Case

Professional Member

Heather is Deputy Director of Data and Analytics for NHS Dorset Integrated Care Board
Black and white portrait of Sam Fortune

Sam Fortune

Public Member

Sam has a strong interest in people’s opinions and motivations, recognising that what matters to one person may not be as important to another.
Black and white portrait of Dr Nicholas Fuggle

Dr Nicholas Fuggle

Professional Member

Nicholas is an Associate Professor in Rheumatology at the MRC Lifecourse Epidemiology Centre and an Honorary Consultant Rheumatologist at University Hospital Southampton.
Black and white portrait of Dr Patricia Fuller

Dr Patricia Fuller

Professional Member

Patricia is a Research Fellow at the University of Southampton, specialising in mixed-methods research with a focus on inclusive and participatory approaches to clinical research and trial design.
Black and white portrait of Sandra Hall

Sandra Hall

Public Member

Since the start of the COVID-19 pandemic, Sandra has been involved in community research, particularly around vaccine uptake among minority groups.
Black and white portrait of Keith Gomes Pinto

Keith Gomes Pinto

Professional Member

Keith is the Chief Medical Information Officer (CMIO), Clinical Safety Officer (CSO), and Clinical Lead for Digital at NHS Dorset.
Black and white portrait of John McBeth

Professor John McBeth

Professional Member 

John is Professor of Health Data Science at the University of Southampton, with 25 years’ experience in the research and governance of health data.
Black and white photo of Andy Taylor

Andy Taylor

Public Member

Andy is a retired Information Security Consultant with over 35 years’ experience working across private and public sector organisations, including the NHS.

Prof. Will Jennings

Will Jennings, Professor at Southampton, studies political trust and trustworthiness, supporting transparent, public-benefit data access decisions on Wessex SDE’s committee.

Data access decisions and reporting

Decisions made by the Wessex Data Access Committee (DAC) on data access requests are published promptly after each meeting to ensure openness and accountability.

Below you can find the committee’s Terms of Reference, meeting agendas, and minutes, which include summaries of discussions and outcomes.

Details of approved data access requests will also be published in our Data Use Register (DUR) in due course. Where necessary, any personal or sensitive information may be withheld to protect confidentiality and security.

Raising concerns

There are three ways to raise a concern with the Wessex SDE:

  1. Through the UHS concerns and complaints process
  2. Using the contact form on the SDE website
  3. By phone on 02381 205 314 or email WessexSDE@uhs.nhs.uk to the Wessex SDE team

All public concerns are managed under the SDE’s Accountability Procedures and, where necessary, escalated to UHS, the host organisation.

The Wessex SDE is also subject to the Freedom of Information Act (FOIA) and Data Subject Access Requests (DSARs). These are handled in line with legal requirements and coordinated with the UHS Information Governance team, which holds statutory responsibility for responding. FOIA and DSAR requests should follow the process outlined on the UHS website.