Wessex Secure Data Environment - Home Part of the NHS Research Secure Data Environment Network NHS

Data Use Register

As part of our transparency commitment, all research projects that use the Secure Data Environment (SDE) are listed on our Data Use Register.

We will also publish information about the outcomes and impact of research studies that have used the Wessex SDE. Please visit our Data Impact page for more information.

  • The current version of the Data Use Register (DUR) is a beta stage release
  • Co-development with users and members of the public is ongoing
  • Work to optimise the DUR will continue into 2026/27.
Two researchers in lab coats stand by a scientific presentation board, one explaining data visualisations including a DNA strand and molecule diagram.

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INDIGO Community: Investigating DIGital Outcomes in a community setting for patients living with and beyond a diagnosis of cancer. To understand more about the long-term outcomes and service use of patients living with and beyond a diagnosis of cancer Phase II randomised feasibility research administering questionnaires in a mixed methods study.

We can use questionnaires to help us understand how a patient feels about their quality of life (QOL) and experiences of care. These surveys are called Patient-Reported Outcome Measures (PROMS).…

How to navigate the fields of the Data User Register of Wessex SDE

Project Title
The project title is the name of the research. It can sound technical or academic but gives a quick idea of what the study is about.
Lay Summary
The lay summary is a clear, simple explanation of the research, outlining its purpose, how researchers will do it, and expected outcomes for easy understanding.
Public Benefit Statement
Researchers must demonstrate a clear public benefit to access NHS patient data, saying how the study may improve healthcare, patient care, or deliver broader social value.
Health Category (HCRS Category)
The Health Category (HCRS Category) is used to classify diseases or conditions that the research focuses on, such as cancer, diabetes, or mental health. It ensures clear and consistent descriptions of health issues.
Sponsor Organisation
The sponsor is the individual, organisation or partnership that takes on overall responsibility for proportionate, effective arrangements being in place to set up, run and report a research project, ensuring that it meets agreed objectives and conditions. They might not conduct the research themselves, but instead use specialist or NHS researchers or teams to do the actual work.
Contracting Organisation
The contracting organisation is the team or organisation that is actively carrying out the research itself. This could be a university, an NHS hospital trust, a specialist research unit, or a charity with expertise in health research. Identifying the research organisation helps clarify who is directly responsible for conducting the study.
Unique ID
Each research project receives a short, unique identifier code to assist in easy tracking and referencing within NHS systems. This code helps administrators, researchers, and auditors clearly tell one project from another. For example, a Unique ID might look like SDE_YH_PROJ_DC40.
Date of Counter-signed DAA/DSA
The date of the signed Data Access Agreement (DAA) or Data Sharing Agreement (DSA) shows when researchers were officially allowed to use NHS data.
Period of DAA
The Period of DAA is the time allowed for researchers to access and use NHS data for research. It sets a clear start and end date for data access.